QUESTIONS From Those Who KNOW

Sensory Processing Disorder  

Cindy Jusino & Jeanette Baker



Paperback & eBook available

 

As a mother of a child with sensory processing disorder, I know you can have many unanswered questions about your child's or loved one's diagnosis. That is where the idea of "Questions From Those Who Know" came from. I teamed up with Jeanette Baker, founder of the popular Sensory Processing Disorder Parent Support Group, and reviewed the most asked questions. Here you will see the result of what others have to say helped their children with SPD. Research shows early intervention is key; yet, it can be overwhelming to know where to begin to help your child. We hope that this book will bring you ideas that have worked for others, as well as comfort that you are not alone! We also hope it helps spread knowledge of what SPD is and what it is like to live with.

*Paperback version includes a bonus poem on SPD from Jeanette Baker.



 

Introduction

 This book is my attempt at helping fellow parents and caregivers of children with Sensory Processing Disorder.  When my own son was diagnosed at the age of two, I spent countless hours researching and trying to find the best ways to help him. On the web you can find a mix of ideas that can be overwhelming at times.  I decided that what we really needed was some tried and true advice from the real experts, from the parents and caregivers that are living though this.  In these pages you will find real people implementing strategies and giving advice on caring for a child with Sensory Processing Disorder.  I hope that what you read helps you on your journey, at the very least I hope it brings encouragement to know that you are not alone. The one thing I do want to point out is that I really do believe it gets better.  It may not be noticed from one day to the next, but I find that when I look back at how things were a year or two ago I can really see how we have progressed over time.   Cindy Jusino

 

 

 This book contains real stories from real parents who are all too familiar with Sensory Processing Disorder.  This book will comfort you in times of questioning, frustration and confusion.  Some stories you will be able to relate to more than others as all children with Sensory Processing Disorder are different and have different needs and behaviors.  I have never been sure about what I have wanted to do with my life other than be a mom, help others and be a writer.  I started researching special needs in 2007 when Bean had been given her Sensory Processing Disorder diagnosis.  I wanted to learn as much as I could to help her and improve our family situation.  The more I began to read and learn, the more I wanted a place to go with others who could understand what I was going through. I couldn’t find many resources so I decided to start a website and build my own Facebook pages. I wanted to build a community - an SPD family that would be made up of people from all over the world.  Every day I would look and see the “likes” getting higher and higher, and before I knew it I was over 15,000.  I wanted to continue to find different ways to help Bean, others and myself.  I spoke to Cindy Jusino about writing books and the idea for this book was born and seemed absolutely brilliant to me.   I remember back to when I wanted to know about Sensory Processing Disorder.  I had so many questions.  What doctors do I need to take Bean to?  What therapies will she need?  Will this go away?  What items to buy, what caused this and am I the only one experiencing this?  This book will give a very clear picture of what to expect, how to get a diagnosis and most importantly will reassure you that you are not alone.  There are many others who experience this every day all around the world.  It's not just you. 

  

Being a mom of one child at 17 was difficult.  Having a child so young I definitely did not prepare myself for what was to come and how my life would be about to change.  I thought being a mom would be fun, amazing and so fulfilling.  Yes, it was and has been, but even the smallest tasks were all difficult from bathing, eating and even sleeping.  Tantrums all day long.  Wow, the tantrums were the toughest part of my day.  After four more years I found out I was having another child.  I was already not able to leave the house because of the behaviors.  I knew the chances of this happening again were possible.  Filled with fear of the unknown, I didn’t imagine in a million years I was about to have another child with many more diagnoses than the first child.  I started to notice after I had my second child she was very different but in many ways the same as the first one.  She wanted to be naked, couldn’t wear any clothes, she didn’t want to sleep and when she did it was very little.  She would get very over stimulated by the smallest things and it would result in meltdowns.  She was always overheated, wearing flip flops and shorts in minus fifty weather.  She was constantly seeking messy play, couldn't have bed sheets or blankets on her bed, hugs needed to be at her request and she wiped off her kisses, couldn't socialize like other children, she was always in constant motion, couldn't  seem to sit still at all, she was always climbing, bouncing, jumping and spinning.  Now I understand why, she is a seeker!  I didn’t know what a seeker was back then but I sure do now. 


After a while of running Facebook groups and pages my situation, the diagnosis, the research, what other parents had to say, it all began to fit together like a puzzle.  I now understand why she doesn't like clothes but most importantly I learned about brushing and joint compressions to help her.  I now know why every time sirens go off while we are out she has to cover her ears and how to help her.  Learning about Sensory Processing Disorder can be a lot of information to learn and understand.  We could read every day for the rest of our lives about it and still never learn it all.  I want this book to be a way to give others that understanding.  To be able to listen to the stories from other parents who live with these experiences without all the big words that nobody understands. The Sensory Processing Disorder community would be the best place to begin.  Who better to ask than those parents who have children who have been diagnosed with SPD and live the experience every day.  As I researched I realized I also have SPD, I have finally been given the opportunity to not just understand Bean but myself too, as through several years I wasn't able to understand this and believed I was just different. I want others to read this book so they too can see understand why we are different and feel the ways we do and understand our children better.  I have been inspired by many stories and it is my honor to be able to share some of these stories with you.  Grab a blanket, sit back, get comfortable and get ready to not only understand Sensory Processing Disorder but to also feel a place of belonging. -Jeanette Baker