What SPD Parents Want You To Know

1. SPD is not just parents making excuses for behavior problems in school

2. Our kids are not "bad kids"

3. Our kids do not "lack discipline"

4. You can not "spank the behaviors out of them"

5. We are not making excuses for bad behaviors  

6. "One size fits all" parenting does not work with SPD

7. It is real. It changes. It shifts. It morphs. Just because something was fine one moment, doesn't mean it will be fine the next

8. It can be extremely challenging to live with as well as to parent a child who has it

9. It cause extreme reactions, behaviors, and anxiety

10. Small accomplishments in overcoming SPD issues are huge for kids and families



11. SPD does exist!

12. If you see a child having a meltdown in the store, it's not because they're being a brat. It could be sensory overload

13. A meltdown is not a tantrum

14. Our kids are not weird, or bad. Don't judge, & educate yourself!

15. Change is scary for children with SPD



16. Children with SPD feel like they need to be in constant motion or odd positions like upside down

17. Some food they just can not eat, sometimes it's the texture sometimes it's the sight

18. They won't eat eventually when they are hungry enough

19. SPD is not something they just out grow

20. Be inclusive; someone's path through these woods may not be visible to you, be patient. Their path is just as beautiful and full of potential as the one you can see



21. Malicious opinions are not acceptable and simply being supportive and understanding is very appreciated

22. Children with SPD are not giving us a hard time, they are having a hard time

23. Sounds and smells cause our children meltdown

24. It does not affect everyone the same way

25. Reading about SPD is different than living with it



26. SPD is not "curable"

27. Symptoms or "triggers" may change over time as the child gets older as they are exposed to new/different things & settings

28. Children with SPD are not "spoiled" and they do not do it for attention

29. SPD children are not "retarded!"

30. You are never too young to have SPD. Please don't tell us to give our children more time. Saying "all kids go through things like this" is NOT helpful as we are doubting what we think and you are making those doubts worse



31. We are not bad parents because we cannot control our children sometimes

32. We are good parents because we try our best

33. We wouldn't change them for the world, but we sometimes wish we could change the world for them

34. SPD is a disability

35. Please don't brag to us about how well your child does and how he/she is exceeding expectations with things. It can be hurtful. Just because they are not exceeding levels expected of them doesn't mean they are not exceeding and overcoming lots on a daily basis



36. Don't judge us parents, but support us and encourage us

37. It is not their age

38. SPD is exhausting

39. SPD kids do what typical kids do and they do what SPD kids do, too

40. Either help us parents or get out of the way, please



41. When it looks like our children are spacing out and unable to focus, they are actually trying to process sensations and feelings

42. Understand that our children are smart, beautiful, kind and caring. They are compassionate and have huge hearts

43. Kids (and parents of) have feelings too

44. Do not define our children from a disability

45. SPD is an independent disorder which affects various aspects of how our children function on a daily basis



46. We have good days and bad days

47. We parent our children based on our child's individual needs

48. Girls and boys can have SPD

49. We wish SPD would be recognized so that our children could have things modified in school based on the child's needs

50. We would love for people to learn facts about SPD



51. If you don't like the way a shirt feels on your body you change it. If you don't like a certain food you don't eat it. If you don't like a color, you don't paint a room with it. So don't think we are spoiling our kids who don't like those things either

52. Change is not always good. Change is very difficult for children with SPD

53. Please stop telling us that if we spanked our kids more often that they wouldn't act like this

54. SPD doesn't have a "look"

55. Kids with SPD may only eat certain foods or wear certain clothes



56. Parents have not done anything wrong. This is just the uniqueness of our children

57. SPD is a disorder that you cannot physically see. What may look like defiance is actually the child's inability to cope with his overwhelming environment

58. SPD doesn't just affect the kids, but everyone around them. Adults can also have SPD

59. We are the voice for our children

60. Children aren't the only ones affected by SPD. Sometimes the parent AND child can both have SPD and trigger each other




61. Children with SPD may use weighted blankets for calming. They crave pressure

62. Many children with SPD have a very high IQ and are gifted

63. Until you walk a mile in OUR shoes, DO NOT JUDGE!

64. SPD can be can be debilitating

65. Children with SPD are still amazing kiddos with lots of love to give and receive